Friday, November 26, 2010

I love the internet.

This is an article I found online today. It really helps so much to know that someone else feels EXACTLY how I do. Down to the hate and jealousy and everything.

The doctor's silence tells me everything I need to know. Eventually, he clears his throat, and says in a voice deliberately gentled, "I'm very sorry". And so am I. There on the screen before us, I can make out the form of a tiny curled foetus and, where a few weeks earlier, its heart was thumping with life, it now lies still in the cavernous vacancy of my womb. This is no longer a baby. It is a miscarriage.

It surprises me how surprised I am. This is the sixth baby we will have lost; you would think that I would be used to it by now. But maybe it's not surprising that I had to believe in this baby, as though by investing in it some hope, and some love, I could will it into being.

They have run all the tests. Like the majority of women with recurrent miscarriage, they have found nothing wrong with me. They don't know why this is happening.

In my mother's generation, there were no early pregnancytests, and you weren't officially pregnant until you had missed three periods. These days, it's different. The very first day of absent menstruation can find you racing to the chemist, and then fumbling with instructions and collection pots and testing sticks until that tell-tale blue line makes its announcement.

The next step is a visit to your GP, where you are told the day your baby is due. You are handed a free book on pregnancy containing photographs and descriptions of your developing baby. It confidently states that, by 12 weeks, the foetus is fully formed. (It doesn't warn you here that only five out of six pregnancies make it this far). The book suggests that you make an early appointment with your midwife and begin thinking about where you want your baby to be born. So you do.

And you discover the unmistakable differences that pregnancy brings – the signs that women have never needed testing kits to tell them. A visit from the tit-fairy brings you newly enlarged and extra-sensitive bosoms. You have a vastly increased need for food and for sleep. You feel more squeamish, more nauseous, more emotional and more hygienic. The hormone rushes make you feel like you're stoned. Lack of food makes you violent. You feel the glow of life inside you. You begin to plan and to dream. You probably chat to your baby. You consider its sex and its name.

And then you begin to bleed.

So you've lost your baby. And it's such a massive thing to lose. You, me, everyone reading this, we all started out as a little smudge of amniotic cells. My children would be 18 months old, or four months old, or I would be five months pregnant. I've lost a good friend because her baby was born on the day that mine was due and I have never been to see him. It hurts too much.

I have never known depression like the cloud that descends every time I lose a baby. I can compare it with the death of a close friend and I can honestly say that it's worse. When a friend of mine died suddenly, we viewed the body, we buried him and we were able to say goodbye. I had the company of others who were as grief-stricken as I was. My mind replayed moments with him – a ceaseless video stream of memories, which was part of the way that my brain processed the loss.

With a miscarriage, I'm left battling through the layers of euphemism to even recognise that I have been bereaved. What is this that has happened? "Pregnancy loss"? The word "baby" was never mentioned by the staff in the Early Pregnancy Advisory Unit. When the scan revealed that my baby was no longer viable, I was referred for an operation with the horrendous name of "Evacuation of Retained Products of Conception". My child, described as clinical waste.

If there's no body, how can I grieve? I feel as though I must be kidding myself, wallowing in a morass of grief over a person who never even lived. Every time my mind trips back to this death, this loss, it strikes on empty, because there's nothing there to miss. This jellybean, lying forlornly on some toilet tissue – how can that sum up all my hopes and dreams for this child? How can it contain all my love?

I almost welcome the pain and blood that happens when I miscarry. It seems more real to me than opting for an operation under general anaesthetic. There is pain involved. I want to feel it.

When a friend dies, you can seek solace in the company of other mourners. Miscarriage, by contrast is an entirely private grief. There's me and my partner, and he's generally so intent on protecting and comforting me that it's hard for him to make space for his emotions. "How are you?" a friend will ask, in a conversational tone, and I wonder, do they really want to know the blackness of my mood? Every time it happens, I find it harder to struggle through, and yet I fear that, for my friends, this drama has become repetitive and boring. With each miscarriage I need help more, yet I feel I can ask for it less.

I am a mother. I have a child, conceived after my third miscarriage. In an earnest attempt at consolation, I am repeatedly told "Well, at least you have got him". And it's true, and I love my son dearly: he is perfect, wonderful and amazing. I am aware that the pain of other women who never carry a child must be greater than mine. But that doesn't mean that I'm not hurting. Having had a baby, I know exactly what it is I've lost. I know what it feels like to give birth, to breast-feed and to raise a child. The stack of baby clothes that I have in the attic is slowly diminishing, pragmatically distributed to women who are actually having babies, not ghosts.

And alongside the helplessness and hopelessness there is another, even darker emotion. It could be politely described as bitterness. How it actually feels to me is hatred. I hate pregnant women. This is nuts. I have been heavily pregnant myself and I know it's no fun. What I should feel is sympathy. Envy would be understandable, but hatred? What's going on here?

There's generally no point trying to bury your emotions. It's only by feeling them and naming them that you can get through them. And if you try to run away from them, they have a habit of catching up with you. Jealousy and hatred are impolite, socially unacceptable emotions, but they could serve a purpose. Throughout the animal kingdom, there are examples of bereaved mothers attempting to steal babies. Maybe I'm just part of a bigger picture here. The survival of the species is best achieved if there is a mechanism for matching up thwarted parents with unwanted babies. And I have reached the point where I've thought, "She's got my baby. That's my baby that she's growing." Insanity, I know, but possibly evolutionarily useful insanity.

So where does this leave me now?

The stakes keep rising but we have to keep playing the game. Maybe another baby will arrive to heal the hole in my heart. Or maybe my life will continue, trapped into this loop, like a needle that lands on a record but hits a scratch and lifts off again before the song even starts playing.

On a practical level, we don't seem to have much problem conceiving, which isn't entirely a blessing. I am sincerely grateful that we haven't spent thousands of pounds on IVF to walk this difficult road. But it does mean that any time we want to step off the roller-coaster, to gather our energies for the next ride, we have to avoid trying to conceive a baby that we desperately want. Which makes our lovemaking very poignant. The only fixed point that I can see ahead is the eventual end of my child-bearing years. Either we will have had another baby, or we will have tried. I won't be so sentimental as to say that these unborn babies will stay with me, because they never really lived, but these scars will have made me part of who I am. And I am proud of that.

Our society conspires to render miscarriage invisible. There is an unwritten rule that a woman should never announce her pregnancy until she reaches three months "just in case". Just who is this helping? The first trimester is when a woman does the work of creating the baby. Every organ in the baby's body is formed, and the mother experiences worse fatigue andnausea than at any other point of gestation. Women need to be supported through this vulnerable period and, with no outward sign that they are pregnant, how are they going to access that help if they can't ask for it?

And if they miscarry, as one in six early babies will, women need even more support through their trauma. "Not telling" leaves women stranded with their grief. How can they begin to explain that they are mourning the loss of something whose existence was kept secret in the first place?

Pregnancy is a superstitious time and I can see why women don't want to tempt fate by announcing their news too soon. But fate has dealt me that blow, the one people don't talk about, and I can tell you that the fact that people don't talk about it makes it a whole lot worse.

So talk. Tell. We can be proud of our pregnancies, no matter how "successful" they are. A hurting heart is a sign of a loving heart. The only thing that has really helped me through this is knowing other women who have been through the same thing. Miscarriage is such a common trauma – there is no reason for us to be alone in our grief.

Kate Evans's book on breast-feeding, 'The Food of Love', is published by Myriad Editions (£12.99). Her email is kate@cartoonkate.co.uk

Thursday, November 25, 2010

No more fight.

I think that my fight has officially evaporated. I have been in an uncomfortable state of numb for a while. I don't have to fight to get through the days anymore, which is a plus, and I also can feel some joy in the day. Big improvement. But I still feel angry sometimes. Bitter even, but mostly what I feel day to day is numb. I just don't care. I don't care about seeing or talking to my friends. I don't even want to talk most of the time and would rather shut myself in. I was even shocked when I found myself wondering why I was trying to get pregnant again. I didn't even care. A lot of stuff is just sitting around, chores aren't getting done, because I just don't care. I have a hard time reminding myself that this will all be for good in the end. It's hard to keep in mind what I've learned, too. Did I learn? Am I a better person now? I just feel so damaged. My mind is broken. I find things out of place, or in place, and can't remember how it got there. Then I remember eventually after some staring, that I did it. It's hard, too, because at first, people expected me to be sad. Now they expect me to be normal, and I am just not normal yet. So I feel like I have to keep it to myself. Put on a face. My therapist told me to feel what I feel when I feel it. And I have really been trying to do that, but it is hard when I have to hide it from people. I guess it helps to just get it out, but I can't help but feel that maybe they are right. Maybe I should be over this by now. Why has it been so insanely difficult for me? I don't know. But it is. That's all I do know.

Monday, November 15, 2010

Rough.

So I finally broke down and saw a therapist. Which, to my relief, felt so good. It honestly has helped so much. I was able to validate my feelings, learn a little about grief, and relieve some unnecessary guilt. He also gave me some pointers on what to do from now on. When I start feeling angry, jealous, guilty, or sad, I need to identify the real reason behind the emotions. I can easily say it is because I lost my babies and haven't succeeded in getting pregnant most of the time. Other times, I can't tell what it is. But I let the emotion swell over me anyway because if I don't, it will only get worse. Today after an unexpected conversation that unexpectedly turned to THAT subject, I was in tears for hours. During the conversation my converser mentioned that she knew, just knew, the only way she was able to get pregnant again was because she was so so grateful for the two children she already had.

Knife to the heart.

I was crying uncontrollably for some time. I tried to pinpoint the emotion, but was having difficulty. Anger? Not really. Jealousy? No. Pain. Just pain. From the intensity of it all. From the length of it all. From it all. But I couldn't help myself from letting the guilt wash over me again. Was I being ungrateful? Was that why I couldn't have another baby? Was it because I don't have enough faith? I know that answers to questions wont come until after the trial is over, because that is part of the trial. Not knowing. That is part of having faith. That is part of being patient. But still, I can't help but think that this whole thing would be a lot easier if I knew where the end was. What I should be learning. I know that changes are hard. No, not just hard, down right difficult. I know that this will change me into a better person. I know there will be an end. What end? I don't know, but there will be something. But it doesn't lessen my pain any. I'm starting to wonder now if getting pregnant will even stop this heartache. I used to think that that would be the only cure. But now I don't even know. I don't know.

Tuesday, November 2, 2010

Missing my babies.

I have been thinking a lot the last couple weeks. And sometimes, I don't even know I'm thinking. But after a while I realize I was, and then wish I hadn't. Tomorrow was the due date of my first baby I lost. I wish I could just sleep through the day and somehow just pass over all the emotion and void of the day. But even think of it make me feel it now. I had felt so sure then that it would be ok, because I would be pregnant again on my baby's due date. It wouldn't hurt so badly because I would have something to fill the emptiness. But now, as I think that comforting thought, I can't help but to speculate at everything I have lost. I have lost not just one baby, but two. Now I can't even have a period. Everything about motherhood as been taken from me. I couldn't have my babies, then I couldn't get pregnant, now I can't even ovulate. What kind of woman, (let alone mother) am I? I have had such a terrible time trying so hard to just live life before I knew I wanted another baby. Why is it so impossible now? I try so hard to distract myself. Stay busy, watch TV, do chores, go shopping, something to keep my mind away from the terrible void I feel. But then I start thinking, and next thing I realize is that I've done it. I started wishing for my babies. I started to feel so hopeless. The pain is so crushing, and it is so hard to deal with sometimes. I'm running out of energy to keep trying to put myself together over and over.

I have been trying to just control the emotion and heartache, but that isn't working. All I'm doing is putting out fires. So I managed to come up with some hard to come by motivation and start being proactive. Start trying to prevent instead of dealing with the mess afterward. That kind of perspective works incredible well in medicine, maybe it can emotionally as well. So I start by stitching myself together in the mornings after dreaming about having a positive pregnancy test most mornings. Then I have been trying to stay busy. And it works while I can stay busy, but even 5 minute gaps are enough for everything to unravel. So new game plan. My dear cousin in law (who has been through so much more than me) told me to see a therapist because it helped her so much. So I can hopefully get that phonecall accomplished today. Next, see the good in my trial. This has been one hell of a trip, so may as well make some good of it.

1. I can empathize with other mothers who have lost their babies. I know the heartache. Even if the baby was only a couple weeks along. And I know the emotional roller coaster they will be on for the next several months.
2. I am probably not being patient in this endeavor, but I am babysitting a little girl right now. And my patience for her has increased 100 fold. Also my patience with people I don't like. I have this horrible personality trait that I have always always hated. Sometimes when people rub me the wrong way, or boss me around, or are pessimistic, or know-it-alls, I start to block them out. And even despise them. Time doesn't even erase how I feel. I started feeling like that towards a family member I love so deeply. And I was so conflicted and guilty. Why did I detest them? And I think that this trial may have helped me stamp that personality trait out. I hope so, because it is one of the things I hate in others and the thing I hate most about myself.
3. I have a beautiful healthy son. He is my life. He is my driving force when I have lost my will.
4. I am learning that I really have no control over my life. It is in the Lord's hands, and while he lets me drive most of the time, sometimes there is not one thing I can do until the Lord wills it.
5. It has taught me to pray always.
6. It has taught me to love to fast.
7. It has taught me how weak I am.
8. It has taught me also how strong I am.

I am so broken. I hope this doesn't last much longer.